{"id":17106,"date":"2026-03-11T10:46:19","date_gmt":"2026-03-11T09:46:19","guid":{"rendered":"https:\/\/www.lacarbona.com\/?p=17106"},"modified":"2026-03-19T08:50:47","modified_gmt":"2026-03-19T07:50:47","slug":"cena-solidaria-en-la-carbona","status":"publish","type":"post","link":"https:\/\/www.lacarbona.com\/en\/cena-solidaria-en-la-carbona\/","title":{"rendered":"Cena solidaria en La Carbon\u00e1"},"content":{"rendered":"<p><i class=\"fas fa-envelope\"><\/i> <a href=\"mailto:comunicacion@lacarbona.com\">comunicacion@lacarbona.com \u00a0<\/a>&#8211; <i class=\"fas fa-phone\"><\/i> <a href=\"https:\/\/wa.me\/+34671018787\">+34 671 018 787<\/a><\/p>\n<p>El pr\u00f3ximo <strong>mi\u00e9rcoles 18 de marzo<\/strong> a las <strong>21:00 h<\/strong> celebramos una <strong>cena solidaria<\/strong> para ayudar a <strong>Mart\u00edn, el peque\u00f1o X-Men Jerezano<\/strong>.<\/p>\n<p>Mart\u00edn es un ni\u00f1o de Jerez que vive con una enfermedad extremadamente rara llamada <strong>S\u00edndrome de Pettigrew<\/strong>, una mutaci\u00f3n gen\u00e9tica del gen X de la que solo se conocen dos casos en toda Espa\u00f1a. Desde que naci\u00f3 ha tenido que enfrentarse a numerosos desaf\u00edos, y su familia ha emprendido una lucha constante para dar visibilidad a su historia y la de muchos otros que se enfrentan a situaciones similares.<\/p>\n<p>La cena ser\u00e1 en torno a nuestro <strong>Men\u00fa La Albarizuela<\/strong>, un recorrido por nuestra cocina inspirado en el barrio que nos rodea. <strong>Todos los beneficios ser\u00e1n destinados a la Asociaci\u00f3n \u00abLa aventura de un X-Men\u00bb<\/strong>.<\/p>\n<p><strong>Tu solidaridad puede marcar la diferencia<\/strong>. Cada reserva y cada plato compartido trae esperanza y apoyo a Mart\u00edn y a su familia.<br \/>\n<strong>\u00a1Juntos podemos ayudar a cambiar su historia!<\/strong><\/p>\n<p>\ud83d\udccd Mi\u00e9rcoles 18 de marzo<br \/>\n\ud83d\udd58 21:00 h<br \/>\n\ud83c\udf7d Men\u00fa maridado La Albarizuela<\/p>\n<p>No te lo puedes perder: <strong>Reserva tu mesa y \u00fanete a esta noche solidaria<\/strong>. \ud83e\udd0d<br \/>\n\ud83d\udce9 Informaci\u00f3n y reservas: <a href=\"mailto:comunicacion@lacarbona.com\">comunicacion@lacarbona.com <\/a>&#8211; <i class=\"fas fa-phone\"><\/i> <a href=\"https:\/\/wa.me\/+34671018787\">+34 671 018 787<\/a><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-17107 alignleft\" src=\"https:\/\/www.lacarbona.com\/wp-content\/uploads\/2026\/03\/Martin-el-xmen-jerezano.jpeg\" alt=\"Martin-el-xmen-jerezano\" width=\"271\" height=\"407\" \/><\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"color: #a78532;\">\u00bfQUI\u00c9N ES MART\u00cdN?<\/span><\/p>\n<p>Hola, me llamo <strong>Mart\u00edn<\/strong>, soy de Jerez de la Frontera, C\u00e1diz, y tengo dos <strong>enfermedades ultrararas<\/strong>; su prevalencia es de un ni\u00f1o por mill\u00f3n de habitantes y en Espa\u00f1a solo hay dos casos. Yo soy el \u00fanico de Andaluc\u00eda.<\/p>\n<p>Tengo <strong>s\u00edndrome de Pettigrew<\/strong>, una mutaci\u00f3n del gen X que afecta a mi sistema nervioso central, y adem\u00e1s una alteraci\u00f3n del gen <strong>ALPL<\/strong>, que hace que mi cuerpo no produzca suficiente fosfatasa alcalina.<\/p>\n<p><span style=\"color: #a78532;\">LA AVENTURA DE UN X-MEN<\/span><\/p>\n<p>Es una <strong>asociaci\u00f3n solidaria<\/strong> creada por la familia de Mart\u00edn para <strong>dar visibilidades a enfermedades raras y recaudar fondos para la investigaci\u00f3n<\/strong>, especialmente en enfermedades que no tienen tratamiento ni apoyo suficiente.<\/p>\n<p>&nbsp;<\/p>\n<p>WEB: <a href=\"https:\/\/laaventuradeunxmen.com\">https:\/\/laaventuradeunxmen.com<\/a><br \/>\nDonaci\u00f3n: ES66 2100 8514 4102 0018 6304<\/p>\n<p><a href=\"https:\/\/www.lavozdelsur.es\/ediciones\/jerez\/cena-solidaria-recaudar-fondos-martin-pequeno-x-men-en-jerez_353598_102.html\">Pincha aqu\u00ed para leer la noticia completa en lavozdelsur.es<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>comunicacion@lacarbona.com \u00a0&#8211; +34 671 018 787 El pr\u00f3ximo mi\u00e9rcoles 18 de marzo a las 21:00 h celebramos una cena solidaria para ayudar a Mart\u00edn, el peque\u00f1o X-Men Jerezano. Mart\u00edn es un ni\u00f1o de Jerez que vive con una enfermedad extremadamente rara llamada S\u00edndrome de Pettigrew, una mutaci\u00f3n gen\u00e9tica del gen X de la que solo [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":17129,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-17106","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-classe"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Cena Solidaria en La Carbon\u00e1, Jerez<\/title>\n<meta name=\"description\" content=\"La Carbon\u00e1 organiza una cena solidaria en Jerez de la Frontera, uniendo buena mesa y compromiso social en el coraz\u00f3n de Andaluc\u00eda.\" \/>\n<meta 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